Superhero Heart Run Raises Money and Awareness for Children with Congenital Heart Disease

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KEARNEY, Neb. -- One in every 100 children are diagnosed with congenital heart disease. With no cure, many live with disabilities for the rest of their lives, including six-year-old Avery Weisdorfer.

"I think you are a hero. You know that," said mother Anne Dee Weisdorfer. "Because you're strong and you're brave. That's why I think so."

But Avery doesn't seem to think so. She was born with Hypo-plastic Left Heart Syndrome, meaning she only has half a heart.

"It's definitely changed our lives. There was a lot that I think we took for granted before," Anne said with tears in her eyes. "So everyday's a gift. There's been a lot of times where we were in survival mode."

It's been a difficult journey for the family of six, seeing Avery go through three different surgeries.

Now, she's healthy and does things every little girl loves to do.

"Dollies and play at the park," said Avery.

"You like to play at the park, and can you run races? And can you play in P.E.?" asked Anne Dee as Avery nodded.

"And I can do the crab crawl," Avery added.

Sunday afternoon, Avery met several other brave children as hundreds gathered to walk or run in the Superhero Heart Run.

Avery met one hero in particular, who walked in her behalf and even carried her when she got a little tired.

"All she's went through has really inspired me. I mean, she's worked so hard. She's a strong brave girl that just inspires me to do more," said family friend Kevin Riessland. "She's my hero."

Avery walked with her family, raising awareness for children with CHD and giving more children their very own Heart Hero cape.

"That gives them bravery and strength as they go through their open heart surgeries and are in and out of the hospital during their illness," said Children's Heart Foundation president Kristi Unick.

The Superhero Heart Run charges adults $25 to register, and Sunday's run saw around 400 people. All the funds go towards researching CHD as well as providing children capes.